Data-Sharing Politics and the Logics of Competition in Biobanking

Publikation: Bidrag til bog/antologi/rapportBidrag til bog/antologiForskningfagfællebedømt

Aaro Mikael Tupasela

This chapter explores the challenges associated with the competition logics of large prospective cohort (LPC) biobanks within the European context by identifying the challenges associated with the sharing of samples and data. LPC biobanking involves large collections of human tissue samples from specific populations (usually national). The collections are from, usually, healthy donors who are then tracked over decades to see what diseases they develop over the course of their lifespan. LPC biobanks, therefore, also collect large amounts of health and lifestyle information that can be attributed to the tissue samples collected from the donors. The chapter evaluates the emerging tension between policies and practices in LPC biobanking with reference to the sharing of samples, and re-considers the applicability of social scientific theories that have sought to explain the emerging bio-economy.
OriginalsprogEngelsk
TitelBioeconomies : Life, Technology, and Capital in the 21st Century
RedaktørerVincenzo Pavone, Joanna Goven
Antal sider20
ForlagPalgrave Macmillan
Publikationsdato2017
Udgave1.
Sider187-206
Kapitel8
ISBN (Trykt)978-3-319-55650-5
ISBN (Elektronisk)978-3-319-55651-2
DOI
StatusUdgivet - 2017

ID: 184606698