The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt

  • Rachael A. Gordon
  • Yann Nguyen
  • Nathan Foulquier
  • Maxime Beydon
  • Tamer A. Gheita
  • Raouf Hajji
  • Ilfita Sahbudin
  • Alberta Hoi
  • Wan Fai Ng
  • Jose Alexandre Mendonça
  • Daniel J. Wallace
  • Beverley Shea
  • George AW Bruyn
  • Susan M. Goodman
  • Benjamin A. Fisher
  • Chiara Baldini
  • Karina D. Torralba
  • Hendrika Bootsma
  • Esen K. Akpek
  • Sezen Karakus
  • Alan N. Baer
  • Soumya D. Chakravarty
  • Maria Antonietta D'Agostino
  • Xavier Mariette
  • Dana DiRenzo
  • Astrid Rasmussen
  • Athena Papas
  • Cristina Montoya
  • Suzanne Arends
  • Md Yuzaiful Md Yusof
  • Ionut Pintilie
  • Blake M. Warner
  • Katherine M. Hammitt
  • Vibeke Strand
  • Coralie Bouillot
  • Peter Tugwell
  • Nevsun Inanc
  • José Luis Andreu
  • Marie Wahren-Herlenius
  • Valerie Devauchelle-Pensec
  • Caroline H. Shiboski
  • Anas Benyoussef
  • Sharmila Masli
  • Adrian Y.S. Lee
  • Divi Cornec
  • Simon Bowman
  • Maureen Rischmueller
  • Sara S. McCoy
  • Raphaele Seror
Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity
OriginalsprogEngelsk
Artikelnummer152378
TidsskriftSeminars in Arthritis and Rheumatism
Vol/bind65
Antal sider6
ISSN0049-0172
DOI
StatusUdgivet - 2024

Bibliografisk note

Funding Information:
We are grateful to all of the members of the SjD OMERACT working group: Patricia Hurley, Manuel Ramos-Casals, Wen-Hung Chen, Philip Mease, Tiffany Westrich-Robertson, Reinhard Voll, Lyne Suellen, Arthur Bookman, Athanasios Tzioufas, Atsushi Kawakami, Ava Wu, Chadwick R. Johr, Cristina Vollenweider, Cynthia Lawrence Elliott, G. Omondi Oyoo, Karen Nowak, Marie Wahren-Herlenius, Mercedes Quinones, Mitali Sen, Nancy Carteron, Olufemi Adelowo, Shelly Kafka, Theresa Lawrence Ford, Timothy Radstake, Valeria Valim, Amir Rezaee, Anupam Wakhlu, Gabriela Tabaj, Ingrid de Groot, Inna Gaydukova, Janet Gunderson, Khaled Abdelgalil, Luca Iaccarino, MarÃa Teresa Romero de Albrecht, Maxine Isbel, Nino Tsiskarishvili, Sasikala B, Thomas Grader-Beck, Jane Zochling, Adrian Lee, Fabíola Reis Oliveira, Virgínia Moça Trevisani, Sandra Pasoto, Matilde Bandeira, Vasco Romao, Alena Piatrova, Antton Egana, Ghaith Noiseh, Antoine Sreih, Giuseppina Stifano, Antonia Christodoulou, Thomas Lehman, Anna Stevens, Raphael Procher, Jacques-Eric Gottenberg, Victoria Fana, Antoine Rousseau, Michela Montecchi-Palmer, Sonja Krösser, Mina Massaro, André Franco, Marc Labetoulle, Sylvie Boisramé, Leslie Laing, Andres Pinto, Mike Brennan, Vidya Sankar, Seunghee Cha, Ava Wu, Arun Varadhachary, Anag Galor, Eleonore Bettacchioli, Pilar Briton Zeron, Kirtida Oza, Janicke Jensen, Jolien van Nimwegen, Stefano Barabino, Michael Goldstein, Kelly Nichols, Atsushi Kawakami, Hideki Nakamura, Gaetane Nocturne, Luca Quartuccio, Roberto Giacomelli, Elena Baroloni Bocci, Nicoletta Del Papa, Morjolaine Gosset, Roberta Priori, Angelica Gattamelata, Konstantina Delli, Sandrine Jousse-Joulin, Nishant Gupta, Ian Saldanha, Alan Chen, and Kaori Komori.

Publisher Copyright:
© 2024

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