Living with a disability: a qualitative study of associations between social relations, social participation and quality of life
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Living with a disability : a qualitative study of associations between social relations, social participation and quality of life. / Jespersen, Louise Norman; Michelsen, Susan Ishøy; Tjørnhøj-Thomsen, Tine; Svensson, Marie Kofod; Holstein, Bjørn Evald; Due, Pernille.
In: Disability and Rehabilitation, Vol. 41, No. 11, 2019, p. 1275-1286.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - Living with a disability
T2 - a qualitative study of associations between social relations, social participation and quality of life
AU - Jespersen, Louise Norman
AU - Michelsen, Susan Ishøy
AU - Tjørnhøj-Thomsen, Tine
AU - Svensson, Marie Kofod
AU - Holstein, Bjørn Evald
AU - Due, Pernille
PY - 2019
Y1 - 2019
N2 - Purpose: We explored which shared aspects of social relations were considered important to the quality of life of persons between the ages of 10 and 40 years living with a disability. We examined how social relations were experienced as affecting quality of life and social participation. Materials and methods: Fifteen focus groups involving 48 persons with disabilities were conducted using photo elicitation, preference ranking and props. Focus group interviews were supplemented with seven individual interviews with individuals unable to participate in focus groups. All focus group interviews and individual interviews were audiotaped, transcribed, and thematic data analysis was conducted.Results: We identified caregiving, dependency, and understanding as essential for quality of life. Acceptance from society, discrimination and prejudice, and the ability to participate in society were also highlighted as affecting quality of life. The use of social tactics to avoid confrontation with certain aspects of their disability was common among participants.Conclusions: Across disabilities, caregiving, dependency, understanding and acceptance, and discriminationand prejudice were all important aspects for the quality of life of the individuals. Social relations were closely related to social participation, and the latter affected the quality of life of the participants. Social tactics were used to navigate social relations.
AB - Purpose: We explored which shared aspects of social relations were considered important to the quality of life of persons between the ages of 10 and 40 years living with a disability. We examined how social relations were experienced as affecting quality of life and social participation. Materials and methods: Fifteen focus groups involving 48 persons with disabilities were conducted using photo elicitation, preference ranking and props. Focus group interviews were supplemented with seven individual interviews with individuals unable to participate in focus groups. All focus group interviews and individual interviews were audiotaped, transcribed, and thematic data analysis was conducted.Results: We identified caregiving, dependency, and understanding as essential for quality of life. Acceptance from society, discrimination and prejudice, and the ability to participate in society were also highlighted as affecting quality of life. The use of social tactics to avoid confrontation with certain aspects of their disability was common among participants.Conclusions: Across disabilities, caregiving, dependency, understanding and acceptance, and discriminationand prejudice were all important aspects for the quality of life of the individuals. Social relations were closely related to social participation, and the latter affected the quality of life of the participants. Social tactics were used to navigate social relations.
KW - Faculty of Social Sciences
KW - Disability quality of life
KW - social relations
KW - social participation
KW - social tactics
U2 - 10.1080/09638288.2018.1424949
DO - 10.1080/09638288.2018.1424949
M3 - Journal article
C2 - 29357697
VL - 41
SP - 1275
EP - 1286
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
IS - 11
ER -
ID: 195408342